So you’ve read some information about the protocol. Maybe you’ve watched videos, talked to patients and have seen the remarkable recoveries that people are seeing. This all sounds so good!
YOU. ARE. SO. EXCITED!
So why does that little voice in your head keep saying,
“What if this does not work?”
“Is it really safe to get off of the medications?”
“What about toxicity?”
These are all normal--and common--questions. This is a very big decision and one that should be taken seriously after careful research and a lot of introspection because it is a decision that will CHANGE YOUR LIFE.
When I was at the point where I decided the protocol sounded like a much better alternative to the drugs I was offered, I posted the post below to a group that I had joined with lots of these patients who were discussing their amazing results:
Good morning everyone, I'm struggling with a dilemma. My Avonex is not working. I have had a new enhancing lesion on the last 3 MRIs. I've had MS since 2007 with no disabilities, thankfully. I don't care for my choices due to PML risks (call it paranoia, but I'm just being honest). I agreed to Aubagio if she would agree to run the labs for the vitamin D protocol. However after reading up on Aubagio, I really just don't want to dump anymore junk in my otherwise healthy body. I have been on D3 but only 20,000 IU. I think I'm going to try this because I really feel good about it (vitamin D protocol). I would like to hear from people who have been on it and have (and have not had) success so I can make a solid decision. This is so hard. I would really appreciate it because right now, I'm a little scared. Thanks.
Honestly, the conventional options worried me just as much as the vitamin D with their long list of possible side effects. The protocol only had one...hypercalcemia. These patients did not have hypercalcemia. They were fine. “Just make sure that you drink 2.5 liters of water and don’t eat dairy, and you’ll be fine too, they said.”
They were right! I’m nearly 2 years on the protocol, and all of my labs are fine. My kidneys are fine, and the best part is my MS is a distant memory with completely inactive MRIs.
Hypercalcemia is caused by too much calcium in the body, but if you do not add excess calcium to the body, and you have enough liquid intake to wash any excess through your kidneys, this should not be a concern for you. Hypercalcemia has occurred in patients who do not adhere to the simple dietary restrictions, but even in that tiny population all recovered with no residual effect to their kidneys.
Here is a really informative video by a respected professor and speaker explaining the reasons for the hysteria surrounding high-doses of vitamin D and hypercalcemia.
I asked my group members if they were initially hesitant to start the protocol, why? I also asked them what prompted them to finally decide to start the protocol and how do they feel about their decision today. Here are some of their responses:
I had no concerns, I couldn't think of anything safer with better reported results, I am very happy with my decision.
I was hesitant about making a decision "for the rest of my life", so I committed to one year, instead. It was the dietary restrictions that concerned me, as I had been eating high calcium and didn't think I could give it up, especially nuts, which took four months to taper off of. I'm very certain that, barring complications, I will remain in the Protocol forever, so I can feel this great for the rest of my life! Feeling 80% better pain wise, energy and stamina wise, having my thyroid working again, and making plans for the future are much more exciting than eating yogurt and almonds!
No concerns, my high-school friend that has MS 16 years, told me about it as soon as I found out about my MS. I couldn't wait to start with it. I am happy I did.
1. What were your concerns? The fact that this would be a lifelong path and I would need to find a supportive family doctor.
2. What changed your mind? I found a protocol doctor in Vancouver (a 2 hour ferry crossing and 45 minutes’ drive from my home). I also have a naturopathic doctor who is open minded about the protocol. Still looking for a GP and neurologist who will support me but I felt that 50% support was a safe level.
3. How do you feel about your decision now? Happy about my decision.
1.What were your concerns? Trying to find a doctor or practitioner to do this with.
2. What changed your mind? I found one close to me about the same time I had a relapse and my MS got worse.
3. How do you feel about your decision now? delighted and looking ahead. I have nothing to lose by trying this and everything to gain.
1. No concerns
2. Did not change my mind as allopathic meds were out
3. Good, but embarking on a long journey
Pam: I wasn't hesitant but I had concerns.
1. Convincing my doctor to support me in this so I could get the necessary labs ordered through my insurance company. Finding the right Protocol Practitioner that I could afford.
2. I found a practitioner who also ordered the labs for me and was in my Insurance plan.
3. A year into it, I found a neurologist who orders the lab work for me which made it possible to find a different Practitioner that I could afford and I feel really understands the Protocol and what I am experiencing.
I was more "traditional". My decision was made 2 years ago, the diagnosis was still new for me, the Russian group didn't exist, the English one I don't remember and Spanish/Portuguese I still didn't understand good, so any testimonials I didn't see actually.
1. So the doubt was: would it really work?
2. But here I had the choice: Rebif already didn't work, my lesions triplicated. I had 2 offers: Gilenya and Protocol. And I decided to start both. But Dr. Frischling said that the protocol was not going to work properly with Gilenya. And I decided to give it a try.
3. It started to work in a month! So I understood very fast that the decision was correct.
We realize what a big decision this is, but we also know that this is the safest, most effective and economical treatment available. You can chose drugs that may or may not slow down progression of your disease, or you can stop your disease in its tracks with no more worries about what the future holds. We would never ask anyone to make blind decisions. On the contrary, we believe in sound decision making based on reputable information (we have a private Facebook group here where you can find many articles and studies as well as read other patient's testimonies and videos documenting their improvements).
"Everything you've ever wanted is on the other side of fear."
I spoke to a member of our group this morning who has an upcoming MRI. The member commented that they were not sure how it was going to turn out because they had seen a lot of improvement but still had a way to go. It made me realize that this can be a confusing subject, so I wanted to try to explain it. It bothered me that many people may be feeling that there is no improvement based on physical symptoms and I wanted to clear up some misconceptions and hopefully remove some unnecessary worries.
Disability occurs as a result of damage to the myelin to the point that the neuron can no longer conduct signals and transport them to the intended target.
Having disability does not mean you have active disease. It means you have prior damage. You can have inactive disease and still have disability.
The good news is that you have these cells called oligodendrocytes, and their job is to rebuild myelin. Until 2015, oligodendrocytes were thought to be inefficient at this, but Cambridge University in England put out a landmark study here showing that:
"By adding vitamin D to brain stem cells where the proteins were present, they found the production rate of oligodendrocytes (myelin making cells) increased by 80%. When they blocked the vitamin D receptor to stop it from working, the RXR gamma protein alone was unable to stimulate the production of oligodendrocytes."
So please don't feel as though your disease is not suppressed because you're still seeing symptoms. Recent damage (about 12 months out) will likely see reversal. Anything older than that may or may not be repaired, but if it does, it takes time. Some don't feel improvements for several years.
Please don't lose heart if you're not *seeing* the effect right away, that does not mean it is not working. Just like the damage was working under the radar for quite some time before you noticed initial symptoms, in the same way those oligodendrocytes are hard at work trying to undo all of that damage. It's amazing when physical improvements occur, but the main benefit of the protocol is prevent future activity.
Would you like to learn more? Please check out our Facebook group where you will find REAL help, lots of HOPE and support from people who are halting their disease and are anxious to share their amazing journeys with you!